Eurordis - Rare Disease Europe

Alumni Meetups

• EURORDIS Alumni Meetup - February 2023 - How to apply to a call for research projects with a grant at the European level?

  Watch the recording. 1h30m

  Download the slides here and here.

  Download the list of questions and answers shared during the Meetup.

  Meet the speakers:

  

   

  Interested in learning more about EJP RD and the rare disease research landscape? Take a look at this online course!

  Other useful resources:

  • Portal of the European Commission to find partners.
  • The EJP RD’s Resource Finder provides scientific partners with a vast
    number of existing research data and services grouped into categories
    and represented as 11 `nodes´ in the mindmap.
  • European Commission: Funding & tenders opportunities.
• EURORDIS Alumni Meetup - December 2022 - Everything you always wanted to know about registries

  Watch the recording (1h20min)

  Meet the speakers:

  

  Interested in rare disease registries? Take a look at this online course!

  Other useful resources:

  • Developing a Patient Registry: A Practical Guide
  • ePAG Research and Registries Working Group update
  • Rare Diseases International: Starting a patient registry [Recording]
• EURORDIS Alumni Meetup - September 2022 - How to establish an international group for your rare disease

  Recording not available

  Download the slides here and here

  Meet the speakers:

  

  Interested in this topic? Take the ‘Establishing an international cooperation‘ online course.