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Eurordis - Rare Disease Europe


Start learning now & find out more about our schools

The EURORDIS Open Academy programme empowers its member patient organisations and volunteers through more and enriched information, education and capacity building.

EURORDIS has been providing training programmes since 2008. The EURORDIS Open Academy officially launched in 2018 and has grown to offer 4 training programmes. EURORDIS’ training programmes aim to empower patients and ensure they have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists.

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Recommendations on the required capabilities for patient engagement

⌛️ 2h


Creating Great Mobile Video

⌛️ 2h30m

person divides with palm a red and green figures of people

Conflict of interest in patient engagement

⌛️ 2h


Establishing an international cooperation

⌛️ 2h30m


Registries: how can you work with existing registries or set up a registry?

⌛️ 1h30m


Course 1: Introduction to the European and international research landscape


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Contact the Open Academy team

For more information, please contact

Marta Campabadal, Open Academy eLearning and Outreach Coordinator

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