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Eurordis - Rare Disease Europe


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The EURORDIS Open Academy programme empowers its member patient organisations and volunteers through more and enriched information, education and capacity building.

EURORDIS has been providing training programmes since 2008. The EURORDIS Open Academy officially launched in 2018 and has grown to offer 4 training programmes. EURORDIS’ training programmes aim to empower patients and ensure they have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists.


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Establishing an international cooperation

⌛️ 2h30m

Registries: how can you work with existing registries or set up a registry?

⌛️ 1h30m

Course 1: Introduction to the European and international research landscape

United Nations image

International advocacy for rare diseases

⌛️ 2h30m

Plan & Create for Social Media Success

⌛️ 1h

Reaching the Right People: Celebrities and Influencers

⌛️ 1h15m
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Contact the Open Academy team

For more information, please contact

Tamara Kovazh, Open Academy Manager - Training Coordinator

Tamara Kovazh

Marta Campabadal, Open Academy eLearning and Outreach Coordinator

Keep up to date with the latest training oportunities from the Open Academy