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Eurordis - Rare Disease Europe


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The EURORDIS Open Academy programme empowers its member patient organisations and volunteers through more and enriched information, education and capacity building.

EURORDIS has been providing training programmes since 2008. The EURORDIS Open Academy officially launched in 2018 and has grown to offer 4 training programmes. EURORDIS’ training programmes aim to empower patients and ensure they have the confidence and knowledge needed to bring their expertise to discussions on health care, research and medicines development with policy makers, industry and scientists.

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Introduction to genetics and genomics

⌛️ 2h


Survey design for rare disease patient organisations

⌛️ 5h


Fundamentals of statistics in clinical trials

⌛️ 3h


The European Medicines Agency (EMA)

⌛️ 4h45


Market access & Health Technology Assessment

⌛️ 1h30

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Contact the Open Academy team

For more information, please contact

Marta Campabadal, Open Academy eLearning and Outreach Coordinator

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