The EURORDIS Open Academy School on Scientific Innovation & Translational Research consists of a one week training in June, and the free e-learning modules below, available on demand.
EURORDIS launched this training with the aim of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.
The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with researchers, policy makers and companies responsible for research or research infrastructures.
Expert speakers and researchers, from across Europe, deliver the training each year. The topics covered include the history of genetics, diagnostics, new technologies in gene therapy and drug repurposing.
The first edition of the face-to-face training of the Open Academy School on Scientific Innovation & Translational Research (formerly Winter School) was held in March 2018 in Paris.