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Eurordis - Rare Disease Europe

EURORDIS Open Academy School on Scientific Innovation & Translational Research

EURORDIS School on Scientific Innovation and Translational Research

The EURORDIS Open Academy School on Scientific Innovation & Translational Research consists of a one week training in June, and the free e-learning modules below, available on demand.

EURORDIS launched this training with the aim of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.

The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with researchers, policy makers and companies responsible for research or research infrastructures.

Expert speakers and researchers, from across Europe, deliver the training each year. The topics covered include the history of genetics, diagnostics, new technologies in gene therapy and drug repurposing.

The first edition of the face-to-face training of the Open Academy School on Scientific Innovation & Translational Research (formerly Winter School) was held in March 2018 in Paris.

Download the Open Academy School on Scientific Innovation & Translational Research flyer

Next Open Academy School on Scientific Innovation & Translational Research

The next edition of the EURORDIS Open Academy School on Scientific Innovation & Translational Research will take place from 19-23 June 2023 in Barcelona. Applications are now closed and selected participants will be informed via email in a few weeks.

 

Take part in free online training

Learn more about rare disease research at a time and place that suits you! Take the free e-learning courses below.

The conditions of use for all EURORDIS e-learning courses have been licensed with Creative Commons. More information on the conditions of use.

 

Free

Course 1: Introduction to the European and international research landscape

⌛️2h

Free
Unit 2: Clinical Diagnosis

Course 3: Genetic research to clinical diagnosis of Rare Diseases

⌛️ 3h45m

Free
Unit 3: Patient data

Course 4: Sharing patient data

⌛️ 4h30m

Free
Unit 4: From research to therapies

Course 5: From research to therapies

⌛️3h

Free
Unit 5: Genome editing

Course 6: Genome editing

⌛️ 4h30m

 

Support materials for the Open Academy School on Scientific Innovation and Translational Research

Free

Registries: how can you work with existing registries or set up a registry?

⌛️ 1h30m

 

About the Open Academy School on Scientific Innovation & Translational Research

  • Alumni

    Over 100 patient advocates, from around Europe, have participated in the EURORDIS Open Academy School on Scientific Innovation & Translational Research to date. These include several patient advocates involved in the European Patient Advocacy Groups (ePAGs).

  • Financial support

    The EURORDIS Open Academy School on Scientific Innovation & Translational Research 2020-2023 receives funding under the European Joint Programme on Rare Diseases (EJP RD). The EJP RD has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575.

    The 2018 and 2019 editions of the EURORDIS Winter School were co-financed through the EU-funded Solve-RD project, of which EURORDIS was a partner.

    Financial support is also provided by AFM-Téléthon, the French Muscular Dystrophy Association.

Contact the Open Academy Team

For more information, please contact

Rachel Butcher, Open Academy Training Manager



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