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Eurordis - Rare Disease Europe


Recommendations on the required capabilities for patient engagement

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This online course provides recommendations on the competencies (understood as knowledge, skills and behaviours) and resources that each stakeholder organisation should aspire to have in place in order to plan, implement and evaluate meaningful and sustainable patient engagement activities across the medicines lifecycle.

This course is based on one of the main outcomes of the IMI funded multi-stakeholder consortium PARADIGM (Patients active in research and dialogues for an improved generation of medicines). The Patient Engagement Toolbox centralises all PARADIGM’s co-created recommendations, tools and relevant background information to make patient engagement in medicines development easier for all. This course focuses on a specific guide: Recommendations on the required capabilities for patient engagement

This online course does not address the specific competencies of the patient participants involved in patient engagement activities.

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