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Eurordis - Rare Disease Europe

Learn with the EURORDIS Open Academy

Increase your knowledge and skills in the rare disease space


The EURORDIS Open Academy aims to provide training that empowers not only its member organisations and volunteers, but anyone interested in learning more about the rare disease landscape.

Through more and enriched information, education and capacity building, EURORDIS has been providing training since 2008 and has grown to offer multiple programmes and courses.

The Open Academy training programmes aim to empower patient advocates in particular and ensure they have the confidence and knowledge needed to bring their expertise to discussions on healthcare, research and medicines development with policy makers, industry and scientists.

Applications are open for the Training on Leadership and Communication Skills

EURORDIS, with the European Joint Programme on Rare Diseases and the Medical University of Gdańsk, have launched applications for in-person training in Gdańsk, Poland, the 26-27 October 2023, that aims to teach patient advocates presentation, negotiation and leadership skills in order to improve their ability to communicate and represent needs in an assertive way, to influence important decisions when engaging with healthcare providers and other rare disease stakeholders. The deadline for applications is 26 April.


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Course 5: The European Medicines Agency (EMA)

⌛️ 4h45


Course 7: Market access & Health Technology Assessment

⌛️ 1h30


Ordinary Legislative Procedure – How are decisions taken by the EU?

⌛️ 1h30


Introduction to the European Union Institutions

⌛️ 2h


Recommendations on the required capabilities for patient engagement

⌛️ 2h


Creating Great Mobile Video

⌛️ 2h30m

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Contact the Open Academy team

For more information, please contact

Sharon Aston, Open Academy & Events Director

Marta Campabadal, Open Academy eLearning and Outreach Coordinator

Rachel Butcher, Open Academy Manager - Training Coordinator

Keep up to date with the latest training oportunities from the Open Academy