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Eurordis - Rare Disease Europe

Increase your knowledge and skills in the rare disease space

Learn with the Open Academy

The EURORDIS Open Academy accompanies patient advocates by offering rare disease-specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Our Schools offer a blended learning approach including eLearning courses, webinars and in-person training as well as research visits and networking opportunities.

Our programme is developed with expert trainers identified from the research, regulatory, industry and patient community to build competence and provide support and advice. Thanks to EURORDIS’ experience and reputation, trainees receive up-to-date, actionable content delivered through engaging learning methods, leading to the achievement of concrete results.

Amongst other examples, Open Academy alumni have gone on to:

    • Participate in or set-up a disease-specific CAB (Community advisory board) to help design clinical trials and identify the most relevant endpoints for patients
    • Co-design or jointly submit proposals for research projects, ensuring the project meets the needs and priorities of the patients
    • Register as a patient expert and participate in activities in the European Medicines Agency (EMA) such as protocol assistance and scientific committees

New! e-learning courses translated into Spanish and French

We are excited to announce the launch of 10 popular e-learning courses, now available in Spanish and French! Translated from the original courses in English, they cover a range of coveted topics designed to enhance your skills and knowledge. Whether you are looking to learn more about advocacy or communications, these courses provide comprehensive, accessible and high-quality content tailored for Spanish and French speaking learners. Don’t miss this opportunity to learn in your preferred language.


Our programmes are provided free of charge to patient advocates and are designed with accessibility in mind. Additionally, Open Academy graduates benefit from our alumni network which offers ongoing support and access to exclusive additional resources, networking, volunteer opportunities and further training.

Start learning now with our free online courses

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Introduction to genetics and genomics

⌛️ 2h


Survey design for rare disease patient organisations

⌛️ 5h


Fundamentals of statistics in clinical trials

⌛️ 3h


The European Medicines Agency (EMA)

⌛️ 4h45


Market access & Health Technology Assessment

⌛️ 1h30

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Contact the Open Academy team

For more information, please contact

Marta Campabadal, Open Academy eLearning and Outreach Coordinator

Keep up to date with the latest training opportunities from the Open Academy