Skip to content

Eurordis - Rare Disease Europe

Increase your knowledge and skills

The EURORDIS Open Academy empowers patient advocates with knowledge and skills to take part in patient engagement roles side-by-side with all stakeholders and to advocate for rare diseases on a European and national level.

Trainings are delivered in English in a blended format, comprising e-learning modules, pre-training webinars and face-to-face/online intensive days. Our offer is composed of various schools, for EURORDIS members, and e-learning courses are open to anyone to take on this website


Start learning now

Without knowledge we are nothing. That is why the Open Academy is so important for patient advocates to really make changes in their communities, in the life of patients.

Biljana Mircheska, North Macedonia, Save Liver Association of Patients with Liver Diseases

Our alumni


By 2022, the Open Academy has trained over 634 patient advocates from 51 countries and counts over 2316 e-learning users from 147 countries.

Our faculty


The faculty of the Open Academy has now reached 64 experts in the fields of scientific innovation and translational research, medicines development, research, social media, conflict resolution, communication, leadership and international advocacy.

Training hours


The programme provides close to 70 training hours per year of live sessions (online and face-to-face) while having nearly 65 h of e-learning courses freely available online in addition to the training sessions.

Our trainings are delivered with...

  • Quality

    All courses are taught by Open Academy faculty members who are recognised experts in their fields.

  • Variety

    Open Academy programmes are taught in English, through a blend of online and face-to-face trainings, during which patients acquire an understanding of key concepts and terminology, take part in master classes, discuss case studies and benefit from peer-to-peer learning. The programmes aim to enhance the capacity of patient advocates so they can engage concretely in research, policies and services.

  • Open access

    The Academy is characterised as open as all online training modules are also made freely available via this website to anyone interested in building their capacities independently.

  • Vision (future-oriented)

    The Open Academy schools and online training use innovative delivery methods.

  • Independence

    The EURORDIS Open Academy operates independently, ensuring there is no conflict of interest in the programme design, content, faculty or funding mechanisms.

  • Accessible and inclusive

    The Open Academy strives to be affordable and as accessible as possible with the learning methods.

New online course about the rare diseases research landscape

Are you curious about who the main actors are in rare disease research, who provides the funding, and all the ways your organisation can be supported? Join this Open Academy online course on EU and international rare disease research to find out!

Start straight away and learn at your own pace!

Contact the Open Academy team

Sharon Aston, Open Academy & Events Director

Marta Campabadal, Open Academy Manager - e-Learning and Outreach Coordinator

Keep up to date with the latest online courses and call for applications from the Open Academy