Skip to content

Eurordis - Rare Disease Europe

Increase your knowledge and skills in the rare disease space

The EURORDIS Open Academy accompanies patient advocates by offering rare disease-specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Our Schools offer a blended learning approach including eLearning courses, webinars and in-person training as well as research visits and networking opportunities.

Our programme is developed with expert trainers identified from the research, regulatory, industry and patient community to build competence and provide support and advice. Thanks to EURORDIS’ experience and reputation, trainees receive up-to-date, actionable content delivered through engaging learning methods, leading to the achievement of concrete results.

Amongst other examples, Open Academy alumni have gone on to:

    • Participate in or set-up a disease-specific CAB (Community advisory board) to help design clinical trials and identify the most relevant endpoints for patients
    • Co-design or jointly submit proposals for research projects, ensuring the project meets the needs and priorities of the patients
    • Register as a patient expert and participate in activities in the European Medicines Agency (EMA) such as protocol assistance and scientific committees

New e-learning course on survey design for rare disease patient organisations!

Follow our specialised e-learning course on survey design, tailored to empower patient organisations in their mission. Gain the knowledge and skills needed to create impactful surveys, collect vital insights, and drive positive change within the rare disease community. Enroll today to make a difference!

CLICK HERE TO FOLLOW THE COURSE!

Our programmes are provided free of charge to patient advocates and are designed with accessibility in mind. Additionally, Open Academy graduates benefit from our alumni network which offers ongoing support and access to exclusive additional resources, networking, volunteer opportunities and further training.

Start learning now with our free online courses

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Free

Introduction to genetics and genomics

⌛️ 2h

Free

Survey design for rare disease patient organisations

⌛️ 5h

Free

Fundamentals of statistics in clinical trials

⌛️ 3h

Free

The European Medicines Agency (EMA)

⌛️ 4h45

Free

Market access & Health Technology Assessment

⌛️ 1h30

« » page 1 / 5

Contact the Open Academy team

For more information, please contact

Sharon Aston, Open Academy & Events Director



Marta Campabadal, Open Academy eLearning and Outreach Coordinator



Rachel Butcher, Open Academy Manager - Training Coordinator



Keep up to date with the latest training opportunities from the Open Academy