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Eurordis - Rare Disease Europe
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Celebrating the 2024 EURORDIS Open Academy Schools on Medicines Research and Development, and Scientific Innovation and Translational Research
Barcelona, 21 June 2024 The EURORDIS Open Academy Schools 2024 took place two weeks ago, where we welcomed 70+ advocates...
Date:
June 21, 2024
News
Championing Rare Disease Advocacy: insights from EURORDIS Open Academy Alumni
Launched in 2008, the EURORDIS Open Academy equips individuals from across Europe’s rare disease community with the knowledge and advocacy...
Date:
May 28, 2024
News
Nurturing Rare Disease Advocacy: Insights from EURORDIS Open Academy Alumni
In the realm of rare diseases, knowledge and advocacy are paramount. The low prevalence of rare diseases often leads to a...
Date:
March 19, 2024
News
Call for applications: Open Academy Schools 2024
Since 2008, EURORDIS has offered multiple programmes and courses to patient advocates, empowering not only our member organisations and...
Date:
July 7, 2023
News
The power of knowledge: how the EURORDIS Open Academy is empowering patient advocates to challenge the status quo of rare diseases
For more than twenty-five years, EURORDIS-Rare Diseases Europe has been at the forefront of advocating for people living with a...
Date:
September 20, 2022