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Eurordis - Rare Disease Europe

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NewsNurturing Rare Disease Advocacy: Insights from EURORDIS Open Academy AlumniIn the realm of rare diseases, knowledge and advocacy are paramount. The low prevalence of rare diseases often leads to a...Date: March 19, 2024
NewsCall for applications: Open Academy Schools 2024  Since 2008, EURORDIS has offered multiple programmes and courses to patient advocates, empowering not only our member organisations and...Date: July 7, 2023
NewsThe power of knowledge: how the EURORDIS Open Academy is empowering patient advocates to challenge the status quo of rare diseasesFor more than twenty-five years, EURORDIS-Rare Diseases Europe has been at the forefront of advocating for people living with a...Date: September 20, 2022