EURORDIS website
⌛️ 1h30
What?
The goal of this three-day series of events is to empower rare disease patient advocates with knowledge and skills enabling them to effectively participate in advocacy activities at the EU level and, as a result, to influence the EU decisions that have a direct impact on the lives of people living with a rare disease.
When?
The RDW itself will be held from Monday 18 November to Wednesday 20 November 2024 in Brussels.
The stay in Brussels is preceded by a mandatory online programme composed of 2 e-learning modules and 4 webinars. See further details of the programme and logistics below.
Why?
Through RDW, we hope also to raise awareness of rare diseases amongst newly-elected EU decision-makers and present a strong and united message to new MEPs and other policy-makers in Brussels on behalf of the rare disease community.
