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Eurordis - Rare Disease Europe

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Brussels Rare Disease Week 2024

Welcome to Rare Disease Week 2024!

 

EURORDIS is delighted to welcome you to the third edition of the Rare Disease Week (RDW), held in-person at the heart of Europe in Brussels.

Below, you will find more details about the event (programme, practicalities, pre-training) that will be regularly updated.

Find more information on previous RDWs here.

What?

The goal of this three-day series of events is to empower rare disease patient advocates with knowledge and skills enabling them to effectively participate in advocacy activities at the EU level and, as a result, to influence the EU decisions that have a direct impact on the lives of people living with a rare disease.

When?

The RDW itself will be held from Monday 18 November to Wednesday 20 November 2024 in Brussels.

The stay in Brussels is preceded by a mandatory online programme composed of 2 e-learning modules and 4 webinars. See further details of the programme and logistics below.

Why?

Through RDW, we hope also to raise awareness of rare diseases amongst newly-elected EU decision-makers and present a strong and united message to new MEPs and other policy-makers in Brussels on behalf of the rare disease community.

Pre-training

In preparation for RDW24, participants are invited to complete 2 mandatory e-learning courses (approximately 2 hours of study each) and to participate in 4 preparatory webinars. 

See links to the courses and webinars below.

Programme

RDW 2024 training programme

Please see the following document for more details on the preliminary programme for RDW24 > LINK

You will also receive an individualised list of the meetings with MEPs that we have organised for you during the in-person meeting – more information will follow by email.

Practicalities

RDW 2024 logistical and practical details in Brussels

Your room is booked from Monday (check-in) to Thursday (check-out) unless otherwise arranged.

Hotel: Moxy Brussels City Center, Rue du Prince Albert 2, 1050 Bruxelles

Please find more practical and accessibility information here > LINK

Meet the team!

Contact us in case of any questions...

Rachel Butcher - Public Affairs Manager



Julie Pernet - European Public Affairs Senior Manager