EURORDIS Leadership School

The EURORDIS Leadership School consists of a series of webinars, from June to November, and an intensive 3-day training in October.

The EURORDIS Leadership School empowers European Patient Advocacy Groups (ePAGs) advocates and other rare disease patient advocates to be valued partners in European Reference Networks (ERNs) and when engaging with healthcare providers and other rare disease stakeholders.

Expert trainers from across Europe deliver the training webinars and sessions. The topics covered include self-awareness, emotional leadership, communicating with impact, power and influence, conflict resolution and negotiation.

The first edition of the EURORDIS Leadership School took place in 2019.

Next Leadership School training

The EURORDIS Leadership School 2021 consists of a series of webinars, from June to November, and an intensive online training, on 6-8 October 2021.

Applications for this training are now closed.

Alumni

Over 75 rare disease patient advocates, all ePAG advocates, from around Europe, participated in the EURORDIS Leadership School to date.

Financial support

The EURORDIS Leadership School 2020 received funding under an operating grant from the European Union’s Health Programme (2014-2020). The 2021 edition receives funding under an operating grant from the European Union’s Health Programme (2021-2027).