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Eurordis - Rare Disease Europe

EURORDIS Leadership School

The EURORDIS Leadership School consists of a series of webinars, from June to November, and an intensive 3-day training in October.  

The EURORDIS Leadership School empowers European Patient Advocacy Groups (ePAGs) advocates and other rare disease patient advocates to be valued partners in European Reference Networks (ERNs) and when engaging with healthcare providers and other rare disease stakeholders. Expert trainers from across Europe deliver the training webinars and sessions. The topics covered include self-awareness, leadership, communicating with impact, power and influence, conflict resolution and negotiation.

The first edition of the EURORDIS Leadership School took place in 2019.

Next Leadership School training

The EURORDIS Leadership School 2021 consists of a series of webinars, from June to November, and an intensive online training, on 6-8 October 2021. Applications for this training are now closed.

Take part in free online training

Learn more about international cooperation and international advocacy for rare diseases at a time and place that suits you! Take the free e-learning courses below! The conditions of use for all EURORDIS e-learning courses have been licensed with Creative Commons. More information on the conditions of use.

Free
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International advocacy for rare diseases

⌛️ 2h30m
Free

Establishing an international cooperation

⌛️ 2h30m

About the EURORDIS Leadership School

  • Alumni

    Over 75 rare disease patient advocates, all ePAG advocates, from around Europe, participated in the EURORDIS Leadership School to date.

  • Financial support

    The EURORDIS Leadership School 2020 received funding under an operating grant from the European Union’s Health Programme (2014-2020). The 2021 edition receives funding under an operating grant from the European Union’s Health Programme (2021-2027).

Contact the Open Academy Team

For more information, please contact

Tamara Kovazh, Open Academy Manager - Training Coordinator



Tamara Kovazh

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