EURORDIS Digital School

The EURORDIS Digital School on Social & Digital Media is a fully online programme, composed of webinars and e-learning courses, available for free.

The EURORDIS Digital School aims to empower rare disease patient advocates to use digital communication tools to improve the strategic outreach and community-building capacities of their organisations.

The training objectives range from understanding digital landscapes to learning about creating empowered communities, building effective channels and reaching the right people. The trainers include social and digital media experts as well as representatives of patient organisations with invaluable experience in digital media.

The pilot edition of EURORDIS Digital School took place in 2019, at the Ågrenska Resource Centre for Rare Diseases, in Gothenburg. The training was then converted into a fully online programme.

Take part in free online training


Reaching the Right People: Celebrities and Influencers

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  • Webinar: Helping Patient Organisations Plan and Create for Social Media Success. It took place on 18 June 2020, 2-4pm CEST. 
  • Webinar: Building engaged communities: Successful examples from the rare disease community. It took place on 29 July 2020, 4-6pm CEST.
  • Webinar: Working with celebrities: Successful examples from the rare disease community. It took place on 29 September 2-4pm CEST.

If you complete all the courses from 2020 and 2021 and attend the Webinars above, you will be able to claim a certificate.

The programme for the 2021 courses will be available in the autumn. If you have any questions about these courses please contact Alejandro Cuenca, Open Academy Manager – eLearning & Outreach Coordinator:


25 patient advocates from around Europe, representing rare diseases and rare cancers, took part in the pilot of the EURORDIS Digital School in 2019.