The EURORDIS Digital School on Social & Digital Media consists of two days of face-to-face training, held in Gothenburg. A series of online training modules will also be available from 2020.
The EURORDIS Digital School aims at empowering patient advocates, working with rare diseases and rare cancers, to use digital communication tools to improve the strategic outreach and community-building capacities of their organisations.
The training topics covered include understanding social and digital landscapes, creating and nurturing empowered communities, building effective channels and reaching the right people.
Next face-to-face training
The first edition of the face-to-face training of the EURORDIS Digital School took place on 8-9 October, at the Ågrenska Resource Centre for Rare Diseases, in Gothenburg.
20 patient advocates, working with rare diseases and rare cancers, from around Europe, took part in the first face-to-face training of the EURORDIS Digital School, in 2019.