EURORDIS website
āļø 12h
The EURORDIS Open Academy School on Scientific Innovation & Translational Research consists of a 4-days training in June, and the free e-learning modules below, available on demand.
EURORDIS launched this training with the aim of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.
The training equips 40 participants each year with knowledge and skills so they are empowered to effectively participate in discussions with researchers, policy makers and companies responsible for research or research infrastructures.
Expert speakers and researchers, from across Europe, deliver the training each year. The topics covered include the history of genetics, diagnostics, new technologies in gene therapy and drug repurposing.
The first edition of the face-to-face training of the Open Academy School on Scientific Innovation & Translational Research (formerly Winter School) was held in March 2018 in Paris.
Applications for the 2026 Open Academy Schools will open in September 2026!
Take part in free online training
Learn more about rare disease research at a time and place that suits you! Take the free e-learning courses below.
The conditions of use for all EURORDIS e-learning courses have been licensed with Creative Commons.Ā More information on the conditions of use.
Required Pre-Training for Open Academy School Participants
This course includes all the modules below in a single course, which is designed to provide you with a strong understanding of the rare disease research and diagnosis pathway. These modules form part of the required pre-training for the Open Academy SchoolĀ on Scientific Innovation and Translational Research, which participants must complete before attending the in-person session in Barcelona.
Whether you’re a selected participant in the upcoming edition of the Open Academy Schools or a patient advocate eager to learn how medicines are brought to market, you’re in the right place.
Free
Pre-training – Scientific Innovation and Translational Research
You can also take the courses below separately and recieve a certificate for each one
Free
Registries: how can you work with existing registries or set up a registry?
āļø 1h30m
Free
Introduction to genetics and genomics
āļø 2h
Free
Introduction to the European and international research landscape
āļø2h
Free
Setting the landscape
āļø 4h15m
Free
Genetic research to clinical diagnosis of Rare Diseases
āļø 3h45m
Free
Sharing patient data
āļø 4h30m
Free
From research to therapies
āļø3h
Free
Genome editing
āļø 4h30m
Additional resources: Online Courses on Healthcare & Medicine
Diagnosing Rare Diseases: from the Clinic to Research and back.
Discover the role of research, clinical investigation and data sharing in diagnosing rare diseases.
Health Data Ethics & Regulatory Frameworks in Rare Disease Research
Discover the role of health data in rare disease research, exploring the ethics and regulatory frameworks governing data use.
ENROLĀ HERE
From Lab to Clinic: Translational Research for Rare Diseases
Gain an overview of the issues, challenges, and opportunities in translating research into treatments for rare disease patients.
ENROLĀ HERE