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Eurordis - Rare Disease Europe

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NewsEmpowering advocates, advancing knowledge: Highlights from the 2025 EURORDIS Open AcademyThe 2025 edition of the EURORDIS Open Academy Schools took place from the 2- to 4 of June in Barcelona,...Date: June 16, 2025
NewsApplications launch for Open Academy Schools 2025EURORDIS – Rare Diseases Europe has launched applications for the 2025 Open Academy Schools, ushering in an exciting new era...Date: September 23, 2024
NewsEURORDIS Open Academy expands language offeringsThe EURORDIS Open Academy is proud to announce the expansion of its e-learning courses to offer programmes in Spanish, French,...Date: September 13, 2024
NewsPatient Partnership in Rare Disease Research: Insights from EURORDIS Open Academy AlumniCurrently, 94% of rare diseases have no specific treatments. Effective treatments are crucial as they can alleviate symptoms, slow disease...Date: August 28, 2024
NewsCelebrating the 2024 EURORDIS Open Academy Schools on Medicines Research and Development, and Scientific Innovation and Translational Research Barcelona, 21 June 2024 The EURORDIS Open Academy Schools 2024 took place two weeks ago, where we welcomed 70+ advocates...Date: June 21, 2024
NewsChampioning Rare Disease Advocacy: insights from EURORDIS Open Academy AlumniLaunched in 2008, the EURORDIS Open Academy equips individuals from across Europe’s rare disease community with the knowledge and advocacy...Date: May 28, 2024