Latest News View all news Survey design for rare disease patient organisations Follow our specialised e-learning course on survey design, tailored to empower patient organisations in their mission. Gain the knowledge... Fundamentals of statistics in clinical trials Take this course to learn more about the basics of understanding how we are going to measure (or describe) “how... Ethics in clinical trials Take this course to learn more about medical research ethics and the guidelines and principles that are followed to ensure... Mandatory pre-training – School on Medicines Research and Development We would love to hear your feedback once you’ve completed the pre-training. Go back to this page and submit your... The European Medicines Agency (EMA) This course will provide you with an overview of the activities of the European Medicines Agency, its Committees and how... Market access & Health Technology Assessment Take this course to learn more about Health Technology Assessment (HTA), the different Market Access Approaches in Europe and the... Mandatory pre-training – School on scientific innovation and translational research We would love to hear your feedback once you’ve completed the course. Go back to this page and submit your... Ordinary Legislative Procedure – How are decisions taken by the EU? Take this course to learn more about the Ordinary Legislative Procedure of the EU, how the main EU institutions take... Introduction to the European Union Institutions Take this course to learn more about the three main EU institutions: the European Commission, the European Parliament and the... Recommendations on the required capabilities for patient engagement Introduction This online course provides recommendations on the competencies (understood as knowledge, skills and behaviours) and resources that each stakeholder... Creating Great Mobile Video Take this e-learning course to learn the importance of knowing what, where and when your audience consumes content and also... Conflict of interest in patient engagement Introduction This online course aims to raise awareness among patients and the engaging stakeholder organisations on the consequences that different... Establishing an international cooperation Take this course to learn about why and how to establish a fruitful international cooperation with other rare disease patient... Registries: how can you work with existing registries or set up a registry? There are many challenges that can arise when developing registries. However, these are reducing over time due to the advances... Introduction to the European and international research landscape Take this course to learn more about who are the main actors in the rare disease research field, who provides... International advocacy for rare diseases If you want to know what the most important institutions and initiatives for international advocacy are and learn how you... Plan & Create for Social Media Success This free interactive course is about helping patient organisations to plan and create for social media success. This course will... Reaching the Right People: Celebrities and Influencers This course will give you the skills and knowledge to work with celebrities and influencers to promote your cause and... The Power of Community This course will provide you the skills and knowledge to support you in developing your online communities to their true... Setting the landscape To complete this course, you need to read through all the lessons below. At the end of the course, once... Keep up to date with the latest news, events, and campaigns from EURORDIS Subscribe
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